Living with a disease like Lupus is a struggle in itself, without adding an education, athletic commitment, job, or extracurricular activities. Lupus can’t be predicted; day to day symptoms appear, change, or even worsen. It’s tough to keep up; constantly battling against yourself to try and stay ahead, to prevent a flare from taking over. Living with Lupus teaches you that your body is precious: you only get one. You have to take care of yourself, or else you’ll be in bed for weeks at a time trying helplessly to recover.
Lupus doesn’t have any real defining features. When you see a person on the street, there would be no way to tell they have Lupus, whether they’re current;y sick or not. Lupus is referred to as a “silent disease” for a reason. Inside, they could feel like they’re barely staying upright, but on the outside, they look perfectly healthy. For most, this can either be a blessing or a curse. On one hand, you are able to push through when you can and act like everything’s okay on the outside, but on the other hand, it’s hard to explain to someone or convince someone how ill you actually are. They’ll look at you and say “But you look great, you look okay.” and to them, that means you’re perfectly healthy. The daily struggle is so tough, but it’s even harder when you add in all the extra stress of managing classes, practices, meetings, or even a job. The stress of possibly not being able to perform the way you’re expected to, or want to, is enough to make someone have a minor breakdown. Here’s a glance into the life of someone living with active Lupus: